I’m Lupie

Hi! Thank you for stopping by. I go by the nicknam Lupie Ayah because I have lupus. My grandson named me Ayah when he was 7 months old. We found out later it means “miracle” is Aramaic which makes me happy since it is a miracle to be alive.

My husband is a truck driver, I go with him when I am able and greatly enjoy seeing America. He has Asperger’s Syndrome which is sometimes referred to as a high functioning form of autism. It means he is a genius, can troubleshoot just about anything, an expert at anything mechanical but socially has trouble reading people. I was born an empath which means I naturally read and feel what other living creatures feel. We are not your typical couple. We take the term quirky to a new high and redneck to a new low. With God all things are possible.

When I was 25 years old, I received my first abnormal test result that related to lupus; Hashimoto’s Thyroiditus. I gained 40 pounds and that was just the beginning. Next came the diagnoses of fibromyalgia, I had no idea how much pain one could wake up in. After that came a series of diagnoses; Lupus SLE was confirmed, severe female issues resulting in near death from complications of hysterectomy, diabetes and near liver failure from undiagnosed hereditary hemochromatosis.

Thank God I have lived through much adversity in both health and life events. God has seen me through the valleys and I’ve made it to the well vintaged age of 50. Since 1994 I have had a unit of blood removed every 10 weeks, the only current treatment for hereditary hemochromatosis. I can’t even remember all the names of all the drugs I have been on to treat the other health complications. Not a fan of drugs.

Our little quirky redneck home lies in the heart of the high Mojave Desert, on a mesa near Yucca Valley California. A perfect place for solitude. The song of the coyote is the song of my heart. As an animal empath I love the earth and all the life on it, and worship the God that created it all. That is one reason I am a vegetarian, I can not eat my friends.

Our horse corral is empty but I hold on to the hope that it will be filled with the eager whinny of an adopted Arabian horse in need. Horses are my passion. Lupus has taken a lot from me.

I have done public speaking about growing up as a Jehovah’s Witness. If you would like me to speak at your church send e-mail request to; free2bekathleen@aol.com with “Counter-cult” in the subject line.

Click here to listen to my cult experience